Meet A Real Rockstar.

I am really blessed to have in my life a circle of

really strong, amazing – supportive and loving women.  

Women who daily push and encourage me…

and who truly do bring a sense of balance to my life.

One such woman is in particular the very essence of a ROCKSTAR. 

(although as you’ll quickly see, she by-passes the title herself

and passes it on to her little man)

And I’m privileged beyond measure to share life with her…

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Meet Remy:

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(isn’t he just thing cutest thing ever!)

Remy was born with Tuberous sclerosis complex. (or – TSC)

It is a devastating genetic disease that

causes tumors to form in various organs, primarily the brain, eyes,

heart, kidneys, liver and lungs.

People with TSC often develop epilepsy, autism, and learning

and behavioral problems.

Currently, there is no cure. 

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Remy has had an amazing year!  

But rather than telling you about it myself, I’ll let you read  for yourself…

 

written by Remy’s Mom:  

“Remy has proven that he is a complete and utter ROCKSTAR! He has over come “catastrophic epilepsy” and radical brain surgery (removal of 40% of his right hemisphere) and is approaching his second anniversary of seizure freedom. The further we get away from the reality of seizures, and the more that Remy continues to “close the gap” developmentally, the more I long for this thing called TSC to just go away. He has over come so much, and gained an incredible amount of skills this year. I was just re-reading my page from last year, and I wrote that Remy had just began crawling a few months earlier. This year….he is walking. Can you imagine, a boy who is missing his right motor cortex, walking? He is so incredibly amazing. I can’t begin to explain the pride I feel in the accomplishments this little boy has achieved. I am blessed beyond words to be his mother, and you may not know….but you are so blessed to just know who he is.”

I’d like to challenge you blog friends to donate to the Tubous Sclerosis Alliance – and help make a difference for kids like Remy.  

You can donate by CLICKING HERE.  

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I promise you, no donation is too small.

Together we can find a way to continue to help Remy - 

and a lot of other children who are affected by TS as well.

Thanks friends… much love.

 

 

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